Ehlers-Danlos Syndromes

Ehlers-Danlos Syndromes (EDS) are  13 connective tissue disorders caused by alterations in collagen proteins. As collagen is present in all connective tissues, EDS can affect various parts of the body. This means that people often have a range of health issues which can lead to delays in diagnosis or misdiagnosis. 

 

There are 13 types of EDS with Hypermobile EDS (hEDS) being the most common. Some features are common to all types of EDS (eg joint hypermobility, skin hyperextensibility and tissue fragility).

 

The Ehlers-Danlos Society created an ECHO Educational Program to train professionals in various disciplines to help people with EDS and create knowledge-sharing networks. The movement course was run by World renowned Jeannie di Bon and this is the course I attended. 

 

Jeannie is an internationally recognised Movement Therapist specialising in Hypermobility. Ehlers-Danlos Syndrome and Chronic Pain. As well as having her own practice in London for people with these conditions and teaching her Integral Movement Method (IMM) to movement practitioners, she is a voice for EDS, regularly presenting at conferences around the World.

 

Her journey to this point started when she was introduced to Pilates as a chronic pain sufferer with a hypermobile and unstable body. She was finally diagnosed with EDS, Mast Cell Activation Syndrome (MCAS), Postural Orthostatic Tachycardia Syndrome (POTs) and Chronic Fatigue Syndrome (CFS). 

 

If you would like to know more and discuss how IMM can help you, please contact me at sallydoylepilates@gmail.com.